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Putrino Lab

Mar 15 • 9 tweets • 2 min read • Read on X

Today is #LongCovidAwarenessDay. A day for acknowledgement of the now hundreds of millions of people worldwide who have had their lives indelibly changed by #LongCOVID. This year's Long COVID Awareness Day comes with an edge, though. If we were a thinking, anti-ableist 1/

society, when #LongCOVID was first emerging as a disease state that could cause permanent disability, government leaders would have understood the *existential* threat that we were facing and made decisive moves to protect the population. Instead we saw half measures and weak 2/

decisions that pandered to corporate interests and scoring political points. People with #LongCOVID were othered, patronized and gaslit whilst performative efforts were made to help. As the years have passed, we have seen more protections slip, we have seen more health 3/

policy makers around the world betray the people that they were elected to serve by ignoring the consensus science on #LongCOVID and making health policy decisions based on popular opinion rather than available data (often times their OWN data). There was a miscalculation, 4/

though: what these people haven't counted on is the sheer number of people that their gross negligence and incompetence has harmed. They haven't counted on the fact that great scientists and allies from the PAIS community would be driving science forward on #LongCOVID. They 5/

haven't counted on the sheer force of will that this incredible community of folks with #LongCOVID have to make sure that justice is served and that their voices are heard. So for this #LongCovidAwarenessDay I call on my colleagues in #medtwitter, #researchtwitter and #scicomm 6/

to raise their voices and get LOUD for the #LongCOVID community. If you don't think this is your fight - think again: not one person on this planet is immune from Long COVID and what's more - if our policymakers can be allowed to completely ignore the science on this front 7/

can and will ignore YOUR science the moment it becomes politically expedient to do so. #LongCOVID is everyone's problem and today of all days I ask my colleagues who DON'T have Long COVID to rally behind this extraordinary community and show them they aren't fighting alone. 8/

To everyone with #LongCOVID: we are with you, we see you, we hear you and we will not stop until you are heard. Get loud today, folks. /end

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More from @PutrinoLab

Putrino Lab

@PutrinoLab

Mar 15

This afternoon (US time) I was asked for comment on the recent statements on #LongCOVID in Australia. Here is the statement I provide:
As a scientist, an Australian and one of the world's leading authorities on LongCOVID I was disgusted to see John Gerrard's irresponsible 1/

https://twitter.com/DavidJoffe64/status/1768488423806181646

comments regarding #LongCOVID in the media. The most prominent scientific journals in the world have published systematic reviews of the literature highlighting the fact that 7-12% of acute SARS-CoV-2 infections result in Long COVID - a chronic disease state that has no 2/

approved treatments. #LongCOVID can affect people of any age, gender and health status and according to Dr David Cutler, a leading health economist, it is on track to cost the US government $3.7 Trillion dollars. All consensus science points to the fact that Long COVID is a 3/

Read 5 tweets

Putrino Lab

@PutrinoLab

Mar 12

I wanted to share some additional thoughts, insights and next steps about our latest #LongCOVID research with the brilliant @VirusesImmunity and the work led by @SilvaJ_C, @taka_takehiro, @wood_jamie_1, @LauraTabacof and so many others. If this is the first time you're seeing 1/

https://twitter.com/VirusesImmunity/status/1764341540485259578

this work, I highly recommend checking out @VirusesImmunity's breakdown of the study. It is detailed and complete. Rather than replicating that, I'm going to share some additional thoughts and next steps for the research. The first thing that this study provides us with some 2/

insight on is why #LongCOVID may disproportionately affect women. The findings of this study indicate that testosterone may be *protective* against the manifestation of not only certain LC symptoms, but also the overall severity of LC symptoms. Did you know that for decades, 3/

Read 12 tweets

Putrino Lab

@PutrinoLab

Feb 19

I've been busy the last week or so, you know, actually working the fucking problem and so I was unable to immediately react when the same old clown car of 'experts' (i.e. clinicians on twitter who have not actually read or understood the literature on #LongCOVID) tagged this 1/

and screenshotted my recent thread on #PEM and exercise. I tell you, these folks are nothing if not predictable, but it also goes to show their fundamental lack of understanding of the pathology at play. I mean, I can understand how a paper like this would excite a group of 2/

science deniers with poor research acumen. On the surface, it looks like a really solid paper showing that folks with #LongCOVID benefit from "physical and mental health rehabilitation". Let's dig deeper. The first funny thing about bringing #PEM into this argument is that 2/

Read 25 tweets

Putrino Lab

@PutrinoLab

Jan 27

I’ve been quiet on this platform this week as I had the privilege and singular honor to be invited to a very remote location in Kenya, working with the Maasai people to better understand their physiology. Why am I telling you this?
1. Because it is objectively awesome
1/

But 2. Because there has been a lot of discourse regarding post-acute infection syndromes such as #LongCovid, #MECFS, and chronic #lyme, the presence of PEM and the relationship to exercise. Every time I bring up the dangers of exercise and exertion when PEM is present, a 2/

clown car of bros, fitness fanatics and “experts” on exercise tell me that I just don’t understand exercise the way they understand exercise. Because these takes are getting old, I wanted to do something I rarely do and share some of my pre-COVID research. Prior to 2020, a big 3/

Read 19 tweets

Putrino Lab

@PutrinoLab

Jan 16

You know what, #medtwitter? Fair warning: I’m coming into the week pretty pissed off. I spent the MLK day weekend catching up on reading and thinking about the experiences of people with #LongCovid, chronic #lyme, #MECFS and other PAIS. I finally read Brian Vastag’s touching 1/

obituary for Beth Mazur and I just need to ask: how many more? How many more stories do you need of vibrant, exceptional people being cut down in their prime by these illnesses to finally act? How can you read what @meghanor and @danaparish articulate about chronic #lyme and 2/

all they have done with their lives before and since, yet continue to perpetuate a myth that this illness is made up? How can you read @julierehnyer’s account of fighting for her life her sheer will to live a full life and come to the conclusion that pw #MECFS are simply 3/

Read 12 tweets

Putrino Lab

@PutrinoLab

Jan 8

Ok. One last time: #LongCOVID, #PEM and exercise. Let's talk and I'll try to be REAL clear and REAL simple. If someone has PEM, exercise is contraindicated. Not only do you not prescribe/suggest exercise, you recommend avoiding exercise. That's it. Simple. No gray area.

Why? 1/

Folks with PEM have experienced changes to their physiology. Changes that result in damage when they exert themselves. @RobWust's excellent new paper digs into some of these changes in detail, but the bottom line is: if you have PEM, exertion causes damage. No gray area. 2/

To be clear: in non-disabled bodies that don't have PEM, exercise has many, well-documented benefits. We also know that there are many health conditions that exercise can help to prevent: heart disease, stroke, lung disease, diabetes, metabolic syndromes, etc. No gray area. 3/

Read 11 tweets

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